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Recent Events
Thank You, Thank You, Thank You
to all our Incredible Sponsors, Enthusiastic Participants
and Generous Donors!

Together, we will beat NPC!

Scroll down for all the fantastic events and fundraisers
that have been held in Dillon's honor to raise money for research!

5K For Dillon Papier 
**Recheduled for: Sunday, April 6th, 2014 
Ijamsville, MD 21754

Darrile, Mark & Dillon (NPC) Papier

The Urbana High School Interact Club is hosting a 5K and 1K family run in honor of Dillon Papier (NPC) on Sunday, May 30th. **NOTE:  Rain Date ~ Event Postponed to:  Sunday, April 6th, 2014**

Run for the Cure will feature two races. Starting off the event is the 5K Hybrid run at 9 a.m., designed to be family friendly. The run will traverse many terrains, including grass and concrete. At 10 a.m. there will be a 1K family walk. A celebratory picnic and a children’s pick-up wiffle ball game will be held after the race.

Raffle tickets will be sold at the event, for $1 per ticket. Raffle prizes include a month-long membership at Sarge Athletics training facility, and two baseball lessons with a pro baseball player. Each of the prizes are valued at $100.

All money that is raised from this event will be donated to the National Niemann-Pick Disease Foundation. The Interact Club’s goal is to raise $5,000.

Click Here for the Event Flyer

Click here for the Urbana Town Courier event article.


Dillon Special Guest of NICHD
at Nationals-Mets Game

Dillon announces "Washington Nationals, PLAY BALL!" (left) and
shares a hug with Nicole Yanjanin of the NICHD (right)

Dillon was a special guest at a recent ballgame between the Washington Nationals and the New York Mets!  Dillon was the announcer who lead off the game with the traditional "PLAY BALL," and also had the opportunity to meet with fellow guests including U.S. Secretary of Health and Human Services Kathleen Sibelius, and Alan E. Guttmacher, M.D., Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development.

Dillon and his family were guests of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), which was celebrating 50 years of service.  Thanks to event organizers Crystal and Bray, Dillon even received an autographed Brice Harper bat!

Frederick Dream Dinners Service
June 2, 2012
Extended Through June

On Saturday, June 2nd, 2012, the Frederick Dream Dinners store located just off I-270 in Urbana, hosted a fundraising event to raise money for Niemann-Pick Type C Disease in honor of Urbana resident Dillon Papier.

Dream Dinners owners Tracey Muragaki and Jamie Carr opened the doors of their store to welcome their friends and neighbors for this event with 100% of the proceeds for new guest orders donated to the National Niemann-Pick Disease Foundation for Type C research.

Tracey and Jamie have generously extended the offer to donate 100% of the proceeds for new guest orders for the entire month of June. Please mention "Dillon" when attending a session or enter "NPC" online in the special instruction box at check out. For more information, please visit dreamdinners.com or call 301-874-1515.


Spring Family Festival
Rockville, Maryland
Sunday, April 29, 2012

9:30 a.m. - 1:00 pm

Dillon Papier with baseball
Dillon Papier (NPC)

The B'Nai Israel Sisterhood of Rockville hosteda Spring Festival for the entire family, with proceeds to benefit the National Niemann-Pick Disease Foundation in honor of Dillon. 

The festival featured a carnival with fun activities for children, shopping, food and beverages, and the public was invited to attend. Homebaked goods, popcorn, fruit snacks, chips, juice boxes, water, soda, etc. were available. Wristbands for unlimited moonbounce and carnival games were $10 until April 24, and $15 after that date.

B'nai Israel is located at 6301 Montrose Road, Rockville.

See the flyer/poster for more details.

Cornhole for a Cause
Specific Gravity Pizzeria & Bottle Shop
Salisbury, Maryland
Sunday, April 29, 2012
12:00 Noon

Dillon Papier
Dillon Papier (NPC)

Cornhole teams entered a Cornhole for a Cause competition to raise funds for the fight against Niemann-Pick Disease.   Specific Gravity Pizzeria & Bottle Shop in Salisbury hosted the event in honor of Dillon.

Registration for each team of two players was $20 and the event began at noon on Sunday, April 29. 

See the flyer and registration form for more details. 

Bowling for Dillon!
Brunswick Zone
Columbia, Maryland
Sunday, April 1, 2012
3:00 - 5:00 p.m.

Cousins and buddies, Mira and Dillon
Participants in the Bowling for Dillon! party

A Bowling for Dillon party was held on Sunday, April 1, at Brunswick Zone in Columbia.  Hosted by his cousin, Mira, this event benefitted the National Niemann-Pick Disease Foundation (NNPDF) in honor of Dillon. Attendees enjoyed unlimited bowling, along with hot dogs, baked goods, snacks, and raffles.

Many thanks to Mira, and to everyone who participated in this fun event!

Event flyer/poster

Irwin Family Challedon Golf Outing 2011
Annual tournament organized by Gary and Windy Irwin

Even the kids get into the act, selling golf balls to benefit NPC research in honor of Dillon!

4th Annual Bake Sale

Lots of yummy treats, surrounded by pretty girls -- what more could a guy ask for?

Irwin Family Challedon Golf Outing
May 21, 2010

This tournament was organized by Gary and Windy Irwin, with most of the participants serving in law enforcement careers.

The 2010 Participants

Dillon's friend, Ryan (with arm around Dillon), sold golf balls the day of the event to benefit the National Niemann-Pick Disease Foundation (NNPDF). Also helping out were the Irwin children, Kailyn and William.

Memorial Day Bake Sale

Dillon's friends Nicolette, Katie and Katie spent their Memorial Day weekend baking and selling goodies at Foster's Grille to raise money for Dillon's Fight.

RAGBRAI Ride in Honor of Dillon Papier
July 25 - 31, 2010

What is RAGBRAI?!

RAGBRAI is the (Des Moines) Register's Annual Great Bicycle Ride Across Iowa. It is the largest and longest bicycle touring event in the world, and will average 472 miles on this year's route!

UPDATE: Steve Daitch shared a few wonderful stories of his RAGBRAI adventure and the many people who asked about Dillon and Niemann-Pick Disease. RAGBRAI Riders start by dipping their rear tires into the Missouri River on the western edge of Iowa, and conclude the event by dipping their tires in the Mississippi River on the eastern edge of Iowa. Steve shared that it's a crazy scene at the end of the tour with everyone attempting to dip, but when the three Dillon's Army riders (Steve, Kevin Marroquin and David Viar) opened the NNPDF banner with Dillon's picture, everyone stopped until the photo was taken and cheered for them. Steve said it was a very emotional moment.

Congratulations and many thanks to Steve, Kevin and David!

Steve Daitch, friend and supporter of Dillon Papier, will ride across Iowa from the MIssouri River on the west to the Mississippi River on the east in honor of Dillon in this year's 38th annual RAGBRAI, July 25 - 31, 2010.

Seven-year-old Dillon is affected by Niemann-Pick Disease Type C (NPC), a rare, genetic disease which threatens to take his life, and the lives of all others diagnosed with it.

Sponsors and donors are being sought for this fundraising and awareness event. Donations will fund research to find treatments and a cure for NPC. Please join Steve Daitch and Dillon's Army as we bring all our resources to bear against this formidable foe!

Click here for the RAGBRAI sponsor/donor sign-up sheet.

For more information or to make a donation, contact Darrile Papier.

Donations may also be mailed to:

Attn: Dillon Papier
9741 Royal Crest Circle
Frederick, MD 21704

Please note "RAGBRAI" in the memo area of your check.

Thank you for your "Gift of Hope!"

Massanutten Resort Getaway Raffle
One-Week Luxury Condo Accommodations
Drawing January 4th, 2010, at Foster's Grille, Urbana

UPDATE: Congratulations to raffle winner Robert Turner!
Thank you, everyone who participated!

Dillon Papier

Dillon Papier (NPC), age 7

Win a fabulous one week getaway at beautiful Massanutten Resort in the heart of Virginia's Shenandoah Valley! 

Raffle tickets are available now -- $5 for 1, $10 for 3, etc.  Proceeds will benefit the NNPDF for NPD Type C research in Dillon's honor.

The lucky winner will receive one week in a deluxe two-bedroom, two-bath (whirpool tub) condo, complete with kitchen, fireplace and two decks.  The condo sleeps up to six people. 

Massanutten Resort is within a two-hour drive of Washington, D.C., and offers skiing, tubing and snow boarding during the winter.  Hiking, biking and golf are enjoyed most of the year.  There's an indoor waterpark and two indoor sports complexes for more year-round fun.  

Further, the surrounding area is overflowing with attractions to delight history buffs, antique shoppers, and nature lovers, making Massanutten an outstanding vacation destination.

The prize drawing will be held on Monday, January 4, at 7:00 p.m., at Foster's Grille in Urbana. (Need not be present to win.)

Raffle tickets are available as follows:

$10 increments: $5/1, $10/3, $20/6, $30/9, $40/12, $50/15, $60/18, $70/21, $80/24, $90/27, $100/30
$5 increments: $15/4, $25/7, $35/10, $45/13, $55/16, $65/19, $75/22, $85/25, $95/28

For more details, or to print out a flyer/poster, click here. For more information or to buy tickets, you may also contact Gary and Windy Irwin, or Darrile Papier.

Thank you in advance for making a difference in the lives of all children with Niemann-Pick Disease Type C! Your gift is the "Gift of Hope" that one day they will have more than just their childhood to live a lifetime...

(A special thank you to all our wonderful volunteers! The volunteer who sells the most tickets will win a prize!)

3rd Annual Dillon Papier Charity Golf Tournament, Dinner and Silent Auction
Hollow Creek Golf Club, Middletown, MD
Friday, October 16, 2009

The 2009 Golf Tournament was a resounding success! Thank you for your participation and support!

For more details, please visit our
Golf page.

Dunkin' Donuts
Grand Opening Fundraiser
Wednesday, Oct. 7th - Saturday, Oct. 10th
, 2009

During the Dunkin' Donuts Grand Opening Oct 7 - 10, a dollar from every purchase of one dozen donuts was donated to the National Niemann-Pick Disease Foundation for Niemann-Pick Type C research, in honor of Dillon Papier.

Click the link to view the poster/flyer promoting the fundraiser.

Thank you, Dunkin' Donuts, for helping make a difference in the lives of those living with NPC!

Dunkin' Donuts is located at 2198 Old Farm Drive, Frederick, MD (Rosemont Avenue exit, across from the Fort Detrick entrance).

Thank you again for your support!

Family and Friends Advance the Fight Against Niemann-Pick Disease

Recently, a couple of Dillon's "girl friends" (not to be confused with "girlfriends," which few 7-year-old boys would admit to having) held their own book sale to benefit NPD. 

Sixth graders Nicolette and Katie gathered books, priced them individually, and conducted the sale, getting more friends involved, as well.  Dillon's mom, Darrile, said the girls were "absolutely amazing" in their diligence and dedication to the cause.  :-)

In between sales, Dillon enjoyed a game of baseball with the girls.

See the creative and informative sales flyer developed by the girls.

Generous donations have also been coming in to honor Dillon's Great Aunt Ruth Steinberg's 90th birthday!

Further, Dillon's cousin Debbie and her husband, Kent Doxzon, celebrated their 35th wedding anniversary recently. 

In lieu of gifts, they asked everyone to pitch in for a donation to NNPDF in honor of Dillon's 7th birthday! 

This gift was kept a surprise from Dillon's family, and what a nice surprise it was!  Almost $1400 came to the NNPDF in honor of Dillon as a result. 

This photo shows the Doxzon family at son Sam's graduation party. Ken is to the viewer's left of the graduate, and Debbie is to the right. (Dillon and mom Darrile are in front.)

Thank you, everyone, for your loving support!

"Glory Days" Dining for Dollars
Fundraiser in Honor of Dillon Papier
Glory Days Grill
Bowie, Germantown, and Frederick, Maryland
August 1 - 31, 2009

Dillon Papier and Friends

Dillon and Friends

Glory Days Grill contributed 10% of total food purchases to the National Niemann-Pick Disease Foundation during the month of August. Diners simply asked their server for a copy of their guest check and mailed the guest check receipt to Darrile Papier for redemption.

Glory Days Grill

Orioles Baseball Benefit in Honor of Dillon Papier
Oriole Park Stadium
Baltimore, Maryland

Sunday, August 30, 2009

Dillon Papier and Brian Roberts
 Brian Roberts and Dillon Papier, age 6 (NPC)

Dillon Papier celebrated his 7th birthday in style, honored by the Baltimore Orioles! Attendees supported the fight against Niemann-Pick Disease Type C (NPC), with proceeds benefiting the National Niemann-Pick Disease Foundation and research into treatments and a cure for NPC.

Orioles Benefit for Dillon flyer/poster.

Raffle to Benefit the NNPDF in Honor of Dillon Papier
Gold's Gym
5728 Buckeystown Pike
Frederick, Maryland 
Saturday, August 29, 2009
9:00 a.m. - 1:00 p.m.

Dillon Papier and friends

Gold's Gym hosted a raffle to raise money to benefit the fight against Niemann-Pick Disease in honor of seven-year-old Dillon Papier (NPC).  Prizes included a 20-session personal training package valued at $2000, and many more prizes including Foster's Grille gift certificates!   .

Click here to see the flyer about the raffle and open house event. 

Gold's Gym, Frederick, MD

Zumbathon Fundraiser in Honor of Dillon Papier
Gold's Gym
Frederick, Maryland
Saturday, August 8, 2009
2:00 - 4:00 p.m.

Dillon and Zumba Crew Zumba Dancers
Dillon and the Zumba Instructors! The ZUMBA Workout!

Urbana Dance Studio invited attendees to enjoy an afternoon of Zumba, the hottest new Latin dance-exercise craze, on Saturday, August 8th, from 2:00 - 4:00 p.m. at Gold's Gym, 5728 Buckeystown Pike, Frederick, MD.  The registration fees benefitted the National Niemann-Pick Disease Foundation.

Attendees had tons of fun doing something healthy for themselves while making a difference by supporting vital research toward finding a cure for NPC.

Urbana Dance Studio 

Frederick Keys Benefit for Dillon Papier
Sunday, July 26, 2009
Please visit our Frederick Keys Benefit page for all the details about this fun event.

Baysox Benefit in Honor of Dillon Papier
Sunday, May 31, 2009

Darrile and Mark Papier with son Dillon (NPC)

For complete details, please visit our Baysox page.

Massanutten Resort One-Week Getaway Vacation Raffle
to Benefit the National Niemann-Pick Disease Foundation
Drawing January 5, 2009

Located in the heart of Virginia's Shenandoah Valley, the Massanutten Resort is a first-class resort offering skiing, tubing, snowboarding, hiking, biking and golf, depending on the season. The resort also offers a waterpark, racquetball, fitness centers and much more.

Raffle tickets were sold for the chance to win a one-week stay at the Massanutten during 2009. The raffle was held to benefit the NNPDF in honor of Dillon Papier (NPC), the six-year-old son of Darrile and Mark Papier of Frederick, Maryland.  Proceeds help fund research into treatments and a cure for Niemann-Pick Type C.

For more information about the raffle, click here:  Massanutten Vacation Raffle details

Dillon Papier

Dillon Papier (NPC)

Massanutten Resort



Click here to see
Upcoming Events in
Dillon's Honor