Dillon's Fight For a Cure

This site is dedicated to our son Dillon who lost his fight with a rare, debilitating and fatal disease – Niemann-Pick type C.

It is a devastating disease that robs NPC children of their ability to walk, talk, and swallow, eventually requiring a feeding tube. Seizures are common with a progressive neurological decline that robs children of the ability to recognize their parents and then steals their lives. NPC has been labeled the childhood Alzheimer Disease, due to similar neurofibrillary tangle formation, and lysosome system dysfunction.